Patient and public involvement (PPI)

'Talking about... PPI' is a new video series in which experienced public contributors in mental health research talk to researchers about their role. The conversations offer lots of useful insight, experience and guidance for researchers.

Researcher perspectives

Public contributor perspectives

Funder perspectives


PPI: public contributor perspectives

In this 13 minute conversation, psychologist researcher Emma Černis interviews Heather Boult - a lived experience researcher with 12 years' experience as a public contributor in a wide range of different mental health research studies.

Short on time? Take a look at these shorter clips

Make connections with professionals
PPI enriches research

Top links and resources mentioned in the conversation

Publication: what does good look like in practice
Faulkner and Thomson publication: Emotional labour of involvement and co-production

PPI: funder perspectives

In part one of this conversation, Gail Thornton, a lived experience expert who sits on national funding committees, and Jo Welsman, a PPI Lead for the NIHR Research Design Service (RDS), discuss their experience of what makes great PPI in mental health research.

In the second part of their conversation Gail and Jo talk about the red flags for funding panels when it comes to PPI, and different terminology that's needed.
In the final part of their conversation Gail and Jo talk about the roles of public co-applicant and the PPI lead, and share useful tips.

Top links and resources mentioned in the conversation

Role of a PPI lead - NIHR definition and guidance

https://www.nihr.ac.uk/documents/definition-and-role-of-the-designated-ppi-patient-and-public-involvement-lead-in-a-research-team/23441

Your local Research Design Service and local PPI leads

https://www.nihr.ac.uk/explore-nihr/support/research-design-service.htm

Role of public co-applicant - NIHR guidance

Public co-applicants in research guidance from the Learning for Involvement NIHR website.

Good practice guidelines on the recruitment and involvement of public members on Trial/Study Steering Committees

This NIHR paper is relevant to Gail's comment in the conversation about involvement in governance: https://www.nihr.ac.uk/documents/good-practice-guidelines-on-the-recruitment-and-involvement-of-public-members-on-trial-steering-committees-tscs-study-steering-committees-sscs/27348


Short on time? Take a look at these shorter clips

PPI: researcher perspectives

Heather Boult interviews Dr Simon Hackett - an art therapist and researcher, about his experiences of PPI, including the important lessons he learnt setting up a new PPI group.

Get views on the practical matters
Go out to different settings

Top links and resources mentioned in the conversation

Publication: what does good look like in practice

In the conversation, Heather refers to the publication that she co-authored: https://arc-swp.nihr.ac.uk/publications/public-involvement-in-health-research-what-does-good-look-like-in-practice-public-involvement-in-health-research-what-does-good-look-like-in-practice/  - filled with important principles and practical tips.

PPI group example from NIHR ARC South West Peninsula

Heather is a member of her local Patient and Public Involvement Group: PenPEG https://arc-swp.nihr.ac.uk/ppie/
Researchers are encouraged to connect with similar groups via their local NHR Research Design Service.


More links to recommended PPI resources listed below

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